Chest tubes and heart wires are out, oral meds down,
and she is resting comfortably~ completely worn out.
Dr just came by to say they will do x-ray today
and echo early tomorrow morning...
and IF that all looks good,
we will go home late tomorrow!!!
PTL for He is the Great Physician!!!
I hope this is the only negative thing I will say
and I feel guilty for saying it but...
Step Down is not all it's cracked up to be.
Just keeping it real!!!
Beeping monitors that beep for 10-15 minutes,
lots of meds by mouth and she HATES it,
pain and vomiting,
people in and out turning on the lights,
and no full time nurse.
Now for the positive side~
I am able to be with her ALL the time now
and sleep in the room too.
I am able to help with her care
and know everything going on with her.
I hold her when she's hurting,
am by her side when they take blood,
hold her head when she is vomiting after meds and liquids,
and constantly sing and rock her to sleep.
We had a pretty rough night
but nothing that was unexpected.
She was moved from ICU just 24 hours post surgery
so she is bound to be in pain and sick.
It's a catch 22...
Pain meds make her sick but she needs them
and they are giving her something for nausea.
She's still having trouble urinating...
they have a diaper on her and she will NOT go in it
because she is potty trained~
hard to sit on potty with all the tubes still in.
Doctor made rounds and we have had a shift change.
They all say she is doing well~
chest tubes and heart wires will come out today
and she will have a echo and x-ray as well.
God is good all the time!
I prayed for this child, and the LORD has granted me what I asked of Him.